The Ann Edgar Charitable Trust was founded by Ann Edgar, who was diagnosed with Carcinoid Syndrome in 2005 and who passed away in August 2011.

It was Ann’s cherished wish to leave a legacy that would continue to help others cope with carcinoid syndrome and all forms of Neuroendocrine Tumours. (NETs). The charity was officially registered on 1 September 2011.  


When Ann was diagnosed with Carcinoid Syndrome her first frustration was the difficulty she found in obtaining relevant information and support for the condition within the UK.


The Trust is a general Charitable Trust the main aims of which are to provide information, support, inspiration and hope to those affected by Neuroendocrine Tumours, - patients, carers, family, friends and colleagues. The Trust is aware that when someone is diagnosed with this condition it affects everyone around them.  In addition the Trust seeks to engage with other support providers to strengthen the network of support for all people affected by NETs.

The Trust is run by a board of trustees who provide their services entirely on a voluntary basis.  

  • Hon. President & Acting Chair - David Drummond

  • Treasurer - Margaret McLean

  • NET Natter - Coordinator Priscilla Fernandez

  • Secretary - Carolyn Robertson

  • Medical Advisors - Professor Mark Strachan & Iona Scott


Our membership is growing which is a reflection of the increasing numbers of new diagnoses in Scotland, all members are very welcome to take part in all of the trusts activities.


We are very aware that every patient is different and it is not our intention to dispense medical advice, anyone seeking medical advice should contact their doctors.


The money we raise will be used in Scotland to support people affected by NETs and carcinoid syndrome and to raise awareness of the condition.





Every penny counts and The Ann Edgar Charitable Trust is grateful for all donations made – no matter how large or small. Your donations always make a difference especially to those we aim to help and support and all donations are most gratefully received and will be acknowledged.


How To Donate

The easiest way to donate is to follow this link to  Paypal




or to our Just Giving page




By Post

Donations can be posted to us at the address on our contacts page.


Gift Aid

If you are a UK tax payer you may wish to consider completing a Gift Aid declaration by agreeing to ‘gift aid’ your donations to The Ann Edgar Charitable Trust.


Give As You Earn

Payroll Giving is becoming more popular as it lets you make donations straight from your monthly salary. 


Standing Orders

You can also make a donation by setting up a standard order with your bank and by getting sponsorship for a fundraising activity.



Fundraising is much easier when you do something that interests you, so be honest with yourself, plan ahead and just go for it!


Many ideas are tried and tested but some of the best come about when people try to think outside the box a little bit. Even if you can't come up with of a totally new fundraising idea, try to think how you might change or tweak an existing one.


To help, here are a few ideas that always work and are relatively easy to organise.


  • Marathons, Half Marathons & Fun Runs

  • Walks, Bike Rides & Swims

  • Abseils & Zip Wire

  • Prize Draws, Quizzes, Raffles, Tombola's & Auctions

  • Corporate Dinners & Charity Ball

  • Head Shaves, Hair Colour & Baths

  • Street Collections & Carol Singing

  • Recycling mobiles, batteries, CDs & DVDs

  • Book Swap/Sale

  • Christmas Gift Wrapping

  • Office Ideas – dress down days, guess the weight, swear box, tuck shop, bake sale, bingo, coffee mornings, bonny baby

  • Sponsored Silence

  • BBQ’s

  • Dog Walks

  • Welly Throwing





Our partner organisation Neuroendocrine Cancer UK (formerly the Net Patient Foundation) offers a wealth of information on their website:


Newly diagnosed patients may find their handbook publication of particular help and assistance:

NCUK Handbook

your guide to living with neuroendocrine cancer


MacMillan provide information and support on all varieties of cancers


Contact Details

The Ann Edgar Charitable Trust

c/o The Metabolic Unit

Western General Hospital

Crewe Road South


EH4 2 XU

Phone: 07376 251249


 David Drummond (Chair)


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T: 07376 251249


© The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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