Update on Public Health Covid19 Coronavirus
Given the current public health situation we regret to advise all NET Natter gatherings are suspended until the situation is resolved. We will confirm on our website when meetings resume.
However, we are arranging virtual NET Natter meetings that members can access using the Zoom web conferencing platform. Please see our News &Events page for details. Members will receive an email invite to any meetings arranged.
Our first virtual NET Natter Meeting!
We are grateful to Trustee Priscilla Fernandez and her colleague Tamsin Doust for co-hosting our first virtual NET Natter Meeting, using Zoom software. During these difficult days of lockdown virtual meetings provide a much needed means for members to keep in touch and continue supporting each other.
Relaxation is especially important in these difficult times, and Priscilla explained how Mindfulness can help achieve calm. Tamsin then led a practical session demonstrating how Mindfulness can help achieve calm.
You can watch Priscilla's the slides from Priscilla's talk here ...
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NET Natter Groups
Many people with a NET condition have commented that as the condition is relatively rare it can often be difficult meeting with other NET patients, to share experiences and to exchange advice. So, one of the main aims of the Trust is to provide an opportunity for people to come together to support each other.NET Natter Meetings are informal support meetings which offer an opportunity to meet with others in the (reasonably) local area who are affected by Neuroendocrine tumours - patients, carers, friends and family.
NET Natter Meetings are originated by our partners at the NET Patient Foundation ‘NET Natter Initiative’, and sponsored in Scotland by the Trust.
Where are the NET Natter Groups?
As the name suggests our NET Natter Groups are local events attended by patients and their families. Currently, The Ann Edgar Charitable Trust has five regional groups across Scotland. With many of our Trustees, and patients, based in the Lothians Edinburgh is a natural choice for a local group. We also have a growing number of patients in the west of Scotland, and a group in Glasgow is now well established, with a growing presence also in Ayrshire, with a group who meet regularly in Kilmarnock, a group in Fife, alternating their meetings between Dunfermline and Kirkcaldy, and our newest group is in Aberdeen. At this time we are hoping that new groups can be established in Falkirk and Inverness. Watch this space!
When do NET Natter Groups meet?
Our larger groups, Edinburgh and Glasgow, aim to meet every month and we will publish a schedule of events as they are arranged. Other groups meet as often as resources allow, usually at least every two months.
Who runs NET Natter Groups?
Each group is headed up by a local volunteer, whose role is to identify suitable venues and arrange the event. Our local leaders are supported by our NET Natter Co-ordinator, who works closely with the Trustees.
What goes on at NET Natter meetings?
Most groups enjoy meeting for a chat and to exchange news and information over a tea or coffee. Luncheon meetings in local restaurants are also popular. We are also hoping to host more meetings that will be attended by a guest speaker who can provide useful information on relevant topics, such as diet advice for Nets patients, or relaxation techniques or mindfulness. We always welcome suggestions from members on topics they would like to hear about.
Who can attend NET Natter meetings?
Our meetings are free to attend and open to all patients and their friends and family. All are welcome.
We would love to see you at a future event. We will publish full details of all events on this web page – why not visit regularly to see what’s on!