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19 Mar 2018

It’s National Conversation Week… so let’s get to it and natter!
NET Natter Meetings are informal support groups which offer an opportunity to meet with others affected by neuroendocrine tumours – patients, family, friends and carers. 
Spread the word… find support in y...

30 Jan 2018

Craig's video for World Cancer Day 4 February 2018.

View the video here

You can also read the report in his local paper here

21 Jan 2018

We are aware that people do get fed up with surveys but this one is to inform the Trust's submission to the Scottish Medicines Consortium (SMC) on a new medicine. Xermelo is being assessed by SMC for the treatment of carcinoid syndrome diarrhoea in combination with som...

15 Nov 2017

Our friends at the Net Patient Foundation have produced a report which was launched on November 10 Net Cancer Day.

The report is focused on improving outcomes for patients with NETs in Scotland. The report entitled ‘Widening the NET’, outlines ‘ambitions’ and ‘actions’...

15 Nov 2017

Maggie's in Edinburgh have agreed to run another event for us.  This time a Stress Management workshop at 2:00 pm on Sunday 10 December.  Some of us might find this helpful in the run-up to the festive season. All are very welcome but please do let us know if you wish...

20 Aug 2017

On Saturday 11 November 2017 in recognition of Net Cancer Day The Dead C Trio are hosting a live concert at Pencaitland Bowling Club.  The House Band will be playing live with a selection of special guests.  It promises to be a fantastic night, great variety of music i...

20 Aug 2017

On 10 September Claire will be running in the Great North Run, to raise funds for the Ann Edgar Trust.  Claire has not been running for a while due to injury and this will be her first major run.  We wish her all the very best.  Please support Claire by donating and sh...

16 Aug 2017

A number of our members asked for a summary of this event on 10 August.  Firstly a very big thank you to Maggie's and to Kelly the nutrition advisor for hosting the event.  Kelly had clearly done her homework on NETs and was so responsive to our very many questions.  K...

9 Aug 2017

Lesley's Ladies are taking part in the Pretty Muddy Event being held at Ingliston on 16 September.  Lesley's friends wanted to do something to mark the first year since they lost their friend Lesley Watson to NET Cancer.  They are raising funds for the Trust, so why no...

6 Jul 2017

ENETS is comprised of Europe’s top physicians and scientists dedicated to the treatment of neuroendocrine tumors and carcinoma. The four days of meetings in March in Barcelona with more than 1,500 participants featured posters and presentations from over 350 clinicians...

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Registered Charity No. SCO42556

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