News on Supply of Somatuline Autogel

As discussions over the UK exit from the European Community intensify concerns have been expressed about the post-Brexit supply of some drugs used in the treatment of NETs.  The Trust recently contacted Ipsen to ask about ongoing supplies , and this is what they said:

Ipsen is advanced in its preparations for Brexit and the potential scenarios and challenges that this may introduce. The utmost priority is to ensure there is no disruption to patient supply of medicines. With one of our medicines manufactured in the UK and distributed to over 80 territories worldwide this remains our priority for patients in the UK, EU and beyond. We take this responsibility seriously and have been preparing for the event of a “hard Brexit” or “no deal” scenario since September 2016. We’ve taken steps to secure additional supply where necessary, in addition to being proactive in other ways to ensure there is no disruption to patients.

Steve Chung
Senior Medical Information Officer, Ipsen Medical Information UK & Ireland

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Following the success of our last virtual gathering on 17Jun20 we are delighted to announce our next event on-line. We are most grateful to our friends at Maggies for all their help. Andrew Anderson, from Maggies, Edinburgh, will be hosting a talk on Travel Insurance for Cancer Patients. Yes, we may all have had our travel plans disrupted this year but we all look forward to better times ahead!

Andrew will give his talk on Thursday 30th July, starting at 15:30. Andrew’s talk will last approx. 45mins.

Regular attendees will receive joining instructions by email - if you would like to receive an invite please contact us on

We are delighted to confirm that we will be hosting our next virtual NET Natter meeting, to be hosted by Professor Mark Strachan, on Wednesday the 17th of June 2020 at 14:00. Prof Strachan will be presenting on ‘The Impact of COVID-19 on NETs’. This will be a 20-minute presentation followed by a chance for delegates to chat online too. The meeting will take place on the virtual teleconferencing application called Zoom. Many of you may already be familiar with Zoom, especially during these difficult times when we are using this method to remain in touch with relatives and friends. Details of how to login to the meeting have now been eMailed to all members. However, if you have not received them, or would like some help on the technical side please contact me and I will get back to you at the earliest opportunity.

We look forward to an interesting meeting!

Priscilla Fernandez

NET Natter Co-ordinator

07788 848079


Given the current public health situation we regret to advise all NET Natter meetings are suspended until the situation is resolved. We will confirm on our website when meetings resume.