News on Supply of Somatuline Autogel

As discussions over the UK exit from the European Community intensify concerns have been expressed about the post-Brexit supply of some drugs used in the treatment of NETs.  The Trust recently contacted Ipsen to ask about ongoing supplies , and this is what they said:

Ipsen is advanced in its preparations for Brexit and the potential scenarios and challenges that this may introduce. The utmost priority is to ensure there is no disruption to patient supply of medicines. With one of our medicines manufactured in the UK and distributed to over 80 territories worldwide this remains our priority for patients in the UK, EU and beyond. We take this responsibility seriously and have been preparing for the event of a “hard Brexit” or “no deal” scenario since September 2016. We’ve taken steps to secure additional supply where necessary, in addition to being proactive in other ways to ensure there is no disruption to patients.


Steve Chung
Senior Medical Information Officer, Ipsen Medical Information UK & Ireland

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Members of the Glasgow NET Natter group taking part in a fundraising walk with their donations coming to support TAECT. Great photo and superb effort, thank you all so much 👏👏👏

Our friends at the Net Patient Foundation have produced a report which was launched on November 10 Net Cancer Day.

The report is focused on improving outcomes for patients with NETs in Scotland. The report entitled ‘Widening the NET’, outlines ‘ambitions’ and ‘actions’ to ensure that progress continues to be made in Scottish NET care. It is the first report of its kind focused solely on Scottish patients with a malignant NET and is based on interviews with medical experts and patients from around the country.You can download the full report just click on the PDF below. The report can be viewed here

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T: 07376 251249

E: info@taect.scot

© The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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