News on Supply of Somatuline Autogel

As discussions over the UK exit from the European Community intensify concerns have been expressed about the post-Brexit supply of some drugs used in the treatment of NETs.  The Trust recently contacted Ipsen to ask about ongoing supplies , and this is what they said:

Ipsen is advanced in its preparations for Brexit and the potential scenarios and challenges that this may introduce. The utmost priority is to ensure there is no disruption to patient supply of medicines. With one of our medicines manufactured in the UK and distributed to over 80 territories worldwide this remains our priority for patients in the UK, EU and beyond. We take this responsibility seriously and have been preparing for the event of a “hard Brexit” or “no deal” scenario since September 2016. We’ve taken steps to secure additional supply where necessary, in addition to being proactive in other ways to ensure there is no disruption to patients.


Steve Chung
Senior Medical Information Officer, Ipsen Medical Information UK & Ireland

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Maggie's in Edinburgh have agreed to run another event for us. This time a Stress Management workshop at 2:00 pm on Sunday 10 December. Some of us might find this helpful in the run-up to the festive season. All are very welcome but please do let us know if you wish to attend it helps us with setting up the space at Maggie's.

Full directions for finding Maggie's here


On Saturday 11 November 2017 in recognition of Net Cancer Day The Dead C Trio are hosting a live concert at Pencaitland Bowling Club. The House Band will be playing live with a selection of special guests. It promises to be a fantastic night, great variety of music including folk, rock, jazz, easy listening, pop. There will be a bar where refreshments can be purchased during the concert. Tickets are £10 each and can be bought from Elizabeth Mobile: 07484080999 Email: lizbethjohnstonyoung@gmail.com Tickets are also available from the Winton Arms Pencaitland East Lothian. All money raised will be donated to The Ann Edgar Charitable Trust.

On 10 September Claire will be running in the Great North Run, to raise funds for the Ann Edgar Trust. Claire has not been running for a while due to injury and this will be her first major run. We wish her all the very best. Please support Claire by donating and sharing her BT mydonate page https://mydonate.bt.com/fundraisers/clairedodd1

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T: 07376 251249

E: info@taect.scot

© The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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