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21 Jan 2018

We are aware that people do get fed up with surveys but this one is to inform the Trust's submission to the Scottish Medicines Consortium (SMC) on a new medicine. Xermelo is being assessed by SMC for the treatment of carcinoid syndrome diarrhoea in combination with som...

9 Aug 2017

Lesley's Ladies are taking part in the Pretty Muddy Event being held at Ingliston on 16 September.  Lesley's friends wanted to do something to mark the first year since they lost their friend Lesley Watson to NET Cancer.  They are raising funds for the Trust, so why no...

6 Jul 2017

ENETS is comprised of Europe’s top physicians and scientists dedicated to the treatment of neuroendocrine tumors and carcinoma. The four days of meetings in March in Barcelona with more than 1,500 participants featured posters and presentations from over 350 clinicians...

22 Jun 2017


Our Information Day this year will be on Saturday 23rd September at Maggie's in Aberdeen.  We have some great speakers lined up including Dr. Alex Graveling, Consultant Physician in Diabetes, Endocrinology and General Medicine at Aberdeen Royal Infirmary. Our informat...

22 Jun 2017

There has been a lot of talk at our meetings and on the facebook groups about nutrition and Nets.  Many of our members are on special diets. Kellie the Maggie's nutrition advisor has agreed to hold an interactive event for us at Maggie's in Edinburgh. Full directions h...

26 Apr 2017

Please note this event has been rearranged we are now meeting for a cuppa at The Loft in Haddington at 2:00 pm. Details here http://loftcafebakery.co.uk/

We are holding another of our popular lunches on 10 June at 12:30 this time at Crooked Glen, Fife Leisure Park, Whim...

26 Apr 2017

We are holding another of our popular lunches on 3 June at 12:30 this time at Sarti an Italian Restaurant - 42 Renfield Street Glasgow G2 1NE.  Link to google maps here   Link to the website here The restaurant would like final numbers nearer the time so could you let...

24 Apr 2017

We are all very excited about our new "Lets Talk About Nets" Leaflets remember you saw them here first.  They will be a great addition to our information stands.  We hope you like them.

13 Feb 2017

One of our members Jonathan Williamson has been very busy raising money for research into a genetic condition that affects his family.  The genetic mutation SDH-B means that some family members are susceptible to a rare type of NET Phaeochromocytoma.  You can read Jona...

13 Feb 2017

The Scottish Medicines Consortium decision regarding Everolimus (Afinitor) was announced this afternoon. The relevant Detailed Advice Document can be found here.

Thank you to all who took part in the survey and the focus group.   You can read our submission here.

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T: 07376 251249

E: info@taect.scot

© The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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