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24 Apr 2017

We are all very excited about our new "Lets Talk About Nets" Leaflets remember you saw them here first.  They will be a great addition to our information stands.  We hope you like them.

13 Feb 2017

One of our members Jonathan Williamson has been very busy raising money for research into a genetic condition that affects his family.  The genetic mutation SDH-B means that some family members are susceptible to a rare type of NET Phaeochromocytoma.  You can read Jona...

13 Feb 2017

The Scottish Medicines Consortium decision regarding Everolimus (Afinitor) was announced this afternoon. The relevant Detailed Advice Document can be found here.

Thank you to all who took part in the survey and the focus group.   You can read our submission here.

24 Jan 2017

Rare Disease Day, 28 February as you may know is an annual awareness raising event. You can find out more here.  In Scotland the event will be marked with a reception in the Scottish Parliament on 1 March 18:00 -  20:00 hrs .  This event is free to attend and you can...

A very happy New Year to all our readers.   

This is a time of the year when we all like to reflect on the year gone by and look forward to the year to come and we at the Ann Edgar Trust are no different.  2016 has been a really great year for us.  We have a n...

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© The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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