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21 Jan 2018

We are aware that people do get fed up with surveys but this one is to inform the Trust's submission to the Scottish Medicines Consortium (SMC) on a new medicine. Xermelo is being assessed by SMC for the treatment of carcinoid syndrome diarrhoea in combination with som...

15 Nov 2017

Our friends at the Net Patient Foundation have produced a report which was launched on November 10 Net Cancer Day.

The report is focused on improving outcomes for patients with NETs in Scotland. The report entitled ‘Widening the NET’, outlines ‘ambitions’ and ‘actions’...

15 Nov 2017

Maggie's in Edinburgh have agreed to run another event for us.  This time a Stress Management workshop at 2:00 pm on Sunday 10 December.  Some of us might find this helpful in the run-up to the festive season. All are very welcome but please do let us know if you wish...

20 Aug 2017

On Saturday 11 November 2017 in recognition of Net Cancer Day The Dead C Trio are hosting a live concert at Pencaitland Bowling Club.  The House Band will be playing live with a selection of special guests.  It promises to be a fantastic night, great variety of music i...

20 Aug 2017

On 10 September Claire will be running in the Great North Run, to raise funds for the Ann Edgar Trust.  Claire has not been running for a while due to injury and this will be her first major run.  We wish her all the very best.  Please support Claire by donating and sh...

6 Jul 2017

ENETS is comprised of Europe’s top physicians and scientists dedicated to the treatment of neuroendocrine tumors and carcinoma. The four days of meetings in March in Barcelona with more than 1,500 participants featured posters and presentations from over 350 clinicians...

22 Jun 2017


This is an event not to be missed.  We are meeting at  Barbara and Alistair's house in Dunbar.  They have the most amazing garden and it is worth attending for the garden alone.  This is will be very informal as usual and a chance for a cup of tea and good chat.  Barb...

22 Jun 2017


Our Information Day this year will be on Saturday 23rd September at Maggie's in Aberdeen.  We have some great speakers lined up including Dr. Alex Graveling, Consultant Physician in Diabetes, Endocrinology and General Medicine at Aberdeen Royal Infirmary. Our informat...

22 Jun 2017

There has been a lot of talk at our meetings and on the facebook groups about nutrition and Nets.  Many of our members are on special diets. Kellie the Maggie's nutrition advisor has agreed to hold an interactive event for us at Maggie's in Edinburgh. Full directions h...

26 Apr 2017

Please note this event has been rearranged we are now meeting for a cuppa at The Loft in Haddington at 2:00 pm. Details here http://loftcafebakery.co.uk/

We are holding another of our popular lunches on 10 June at 12:30 this time at Crooked Glen, Fife Leisure Park, Whim...

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T: 07376 251249

E: info@taect.scot

© 2018 The Ann Edgar Charitable Trust

Registered Charity No. SCO42556

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