A very happy New Year to all our readers.
This is a time of the year when we all like to reflect on the year gone by and look forward to the year to come and we at the Ann Edgar Trust are no different. 2016 has been a really great year for us. We have a new website, new marketing materials and our membership is growing. Our information stands at the Western General Hospital and at the Beatson have been very well received by doctors and patients, a real success story and we will continue with these through 2017. A very big thank you to Margaret B, Norman, Margaret M, Carolyn, Douglas and all those who have make these stands happen.
We have attended a number of events from the reception in The Scottish Parliament for Rare Disease Day back in February to The Euordis Conference in May, and The Information Day in East Kilbride in September. More recently it was an honour to present our patients views to the Scottish Medicines Consortium on Everolimus, we will know in January if it gets accepted for routine use in certain Net Patients.
We also want to take the opportunity to thank our members for some amazing fundraising. The Afternoon Tea Party in Pencaitland was a real success. It just goes to show what can be done when a dazzle of zebras get together and put their minds and many talents together and have fun for a great cause. Elizabeth you were fantastic at organising this and pulling it all together. I won't mention everyone who helped out by name because there were so many of you We are very proud of our runners Steve, Hazel and Alan, the warm up even looked like really hard work. Another big thank you to Jane Weir one of our newer members for donating the sales from her stall at the Helensburgh Winter Festival.
It almost goes without saying that our Net Natter meetings have been very popular, if you haven't managed to get along to one, we hope to see you in 2017.
Our Christmas Cards did fairly well too and will have helped raise awareness far and wide.
Our Radio Interview about Nets and Net Cancer is worth a listen here thank you to East Coast FM for having us and to our very own Prof Strachan for making sense of a very complicated subject.