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Rare Disease Day 28 February 2017

Rare Disease Day, 28 February as you may know is an annual awareness raising event. You can find out more here. In Scotland the event will be marked with a reception in the Scottish Parliament on 1 March 18:00 - 20:00 hrs . This event is free to attend and you can sign up here. It would be good to see you there, if you wish to go and meet up before hand please let us know. It is really interesting to learn how much we have in common with other rare diseases and to find out how the Scottish Government is progressing with the Scottish Rare Disease Plan.

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