A number of our members asked for a summary of this event on 10 August. Firstly a very big thank you to Maggie's and to Kelly the nutrition advisor for hosting the event. Kelly had clearly done her homework on NETs and was so responsive to our very many questions. Kelly was clear to point out that no one should make a drastic change to their diet without consulting their doctor. Bearing in mind that there are at least 40 different types of Net and we are all so different Kelly's advice could only be in general terms. It is also important to remember that that some foods cannot be taken with certain treatments.
The general advice was very welcome. Who knew that soya will be of little nutritional benefit unless it has been part of your diet pre puberty?
People were interested in fruit juice and juicing, which is kind of trendy at the moment. Kellie's advice was it is usually better to eat an apple than to drink apple juice that is because some of the nutrients are lost in the juicing process. Juicing does however have a place especially as part of a low fibre diet.
A question that may be relevant to many who have liver mets was how to keep the rest of the liver healthy. In short the answer was broccoli and kale but to increase the amounts in the diet slowly.
Kelly wanted people to know that they can book a one to one appointment with her either by contacting Maggie's or emailing her at ksfanderson@gmail.com.
Further information on diet can be found in the new Net Patient Handbook https://www.netpatientfoundation.org/wp-content/uploads/NET-Patient-Foundation-Handbook-section-5-Web.pdf
Kelly's Food to Glow website also has recipes Kale and Apple Cake is particularly interesting https://kelliesfoodtoglow.com/ with links to her Social media sites.
Kelly handed even handed out a one week menu for a Low Fibre Diet this is not on her website yet but if you are interested we can send you a copy.
I hope this is a fair summary but always remember to consult your doctor if making changes to your diet - we are all different.